Have you been diagnosed with cardiac amyloidosis? If so, you are invited to complete an anonymous survey (less than 15 minutes) to help researchers at the University of Pennsylvania Perelman School of Medicine (Philadelphia, PA, USA). They seek to understand how atrial fibrillation affects symptoms, daily functioning, and quality of life in individuals with cardiac amyloidosis …
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UPDATED: Information about the Medicare Stars Program has been added. See the link below to access those details. Do you need to make changes to your Medicare plans? Will they cover your medications next year? It’s worth checking your plans for 2026 and making any needed changes before the December 7 open enrollment deadline. There …
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In recognition of September being National Afib Awareness Month, we're excited to launch the2025 Get in Rhythm. Stay in Rhythm.® Afib Awareness Campaign! Atrial fibrillation (afib) affects millions. It can lead to a stroke or heart failure if not diagnosed and treated promptly. We're rallying those living with afib—patients, family members, and caregivers—to raise awareness …
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Do you want to attend the Atrial Fibrillation Patient Conference, but need some help financially? If you know you can benefit from attending the Get In Rhythm. Stay In Rhythm.® Atrial Fibrillation Patient Conference August 8-10 in Dallas and would like to apply for the Annual Judy Currier Scholarship—or, you’re already attending but would like …
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In this study, researchers at UMass Chan Medical School are inviting African American and other Black patients with atrial fibrillation (afib) to participate in a program about the power of storytelling. Specifically, they want to see if watching patients tell their stories of successfully taking anticoagulants (blood thinners) can help other patients start and continue …
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UPDATE as of December 2025: Based on current enrollment rates, Dr. Brundel expects to complete the trial around May 2026. We are discussing with her other possible patient-initiated trials and will share our thoughts with you in 2026. Professor Dr. Bianca Brundel, from the Amsterdam University Medical Center in the Netherlands, is a favorite presenter …
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Will your Medicare drug plan cover your medications next year? It’s worth checking one last time before the December 7 enrollment deadline. We hear about formulary changes every year, especially among anticoagulants (blood thinners) and antiarrhythmic drugs. Some formularies stop covering medications that have been covered for years. If your plan drops your medications from …
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Can GeranylGeranylAcetone (GGA) prevent Development of Atrial Fibrillation? December 2, 2024 (Updated December 15, 2025) UPDATE as of December 2025: Based on current enrollment rates, Dr. Brundel expects to complete the trial around May 2026. We are discussing with her other possible patient-initiated trials and will share our thoughts with you in 2026. Summary: The …
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A new clinical trial is enrolling afib patients who, because of your doctor’s decision or your preference, are not currently taking an anticoagulant (blood thinner) to reduce the risk of clots and stroke. The LILAC – TIMI 76 trial will evaluate a monthly medication from a new class of anticoagulants. This clinical trial is recruiting …
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People living with afib often ask if it is safe and effective to take blood thinners as “pill in the pocket” medications. We don’t have the answer yet. However, a new study seeks to answer that question. In the survey that many of you responded to in 2021, you expressed an interest in participating in …
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Do you want to attend the Afib Patient Conference, but need some help financially? If you know you can benefit from attending the Get In Rhythm. Stay In Rhythm.® Atrial Fibrillation Patient Conference August 9-11 in Dallas and would like to apply for the Annual Judy Currier Scholarship—or, you’re already attending but would like to …
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StopAfib.org is a member of the Partnership to Advance Cardiovascular Health (PACH) coalition. PACH is conducting a patient advocacy training program called the Cardiometabolic Leadership Academy, or CLA, for advocates across various cardiometabolic diseases, including afib. Patients will be taught how to raise their voices to advocate for open access to treatments. The CLA is …
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StopAfib.org, joined by a task force of experts representing the nation’s leading cardiology and cardiothoracic surgery organizations, is calling for renewed efforts to address health disparities and improve care for people living with atrial fibrillation. Recognizing the need for more equitable care, StopAfib.org convened the task force to develop a new call-to-action report, “Addressing Health …
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We've worked with the NY Times and they now want to hear your experiences with PBMs (Pharmacy Benefits Managers). Have you been overcharged or had other issues with them? Please use this link to share your experience. Help us flood them with our stories about bad experiences with the PBMs! Thanks for your help. To your …
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A favorite presenter at the Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conferences for the past three years has been Professor Bianca Brundel, PhD, from the physiology department at the Amsterdam University Medical Center in The Netherlands. Dr. Brundel shared with us information on testing how toxic triggers drive afib progression and how …
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StopAfib.org applauds the American College of Cardiology (ACC), American Heart Association (AHA), American College of Clinical Pharmacy (ACCP), and Heart Rhythm Society (HRS) for the newly released 2023 ACC/AHA/ACCP/HRS Guideline for the Diagnosis and Management of Atrial Fibrillation: A Report of the American College of Cardiology/American Heart Association Joint Committee on Clinical Practice Guidelines. Learn …
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Since today is Giving Tuesday, we’re asking for your help. Giving Tuesday is the time of year when people around the world support what matters most to them. We’re not asking for donations for us but instead are asking for your support for patient-driven afib research. At the Get in Rhythm. Stay in Rhythm.® Atrial …
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This month, at the American Heart Association Scientific Sessions held in Philadelphia, several important Afib Late-Breaking Clinical Trials were presented that I want to share with you. These include AZALEA, ARTESiA, and NOAH-AFNET 6. We have posted news stories about them, which you can access here: Afib News from the American Heart Association Scientific Sessions …
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Medicare will negotiate the prices of two afib drugs and is holding Virtual Listening Sessions. They seek to understand the patient's experience with these medications and their alternatives. StopAfib.org has applied to speak on behalf of the afib patient community. We are launching a survey to inform our comments. We would like to understand your …
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For National Atrial Fibrillation Awareness Month, I'm excited to moderate two free afib webinars being hosted by Medtronic. The September 26 webinar features Dr. Devi Nair, Director, Cardiac Electrophysiology & Research, St. Bernards Medical Center, White River Medical Center in Jonesboro, AR. The September 30 webinar features Dr. Nicholas Skipitaris, Western Regional Director, Cardiac Electrophysiology, …
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Do you plan to have an afib catheter ablation? By joining the VIBRANT-AF Study before your catheter ablation, you can contribute your data to an effectiveness study that will improve the care of afib patients having catheter ablations. This study is being done at the University of California at San Francisco by Dr. Greg Marcus, …
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If you’re new to our community, please check out these tools when deciding whether to take blood thinners. Even if you have used them previously, things may have changed about your afib, so it may be worth looking at them again. These tools come from the ENHANCE-AF (Engaging Patients to Help Achieve Increased Patient Choice …
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We are SO excited to share with you that at our 10th anniversary Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference (August 4–6) we will have an incredibly special event on Saturday evening with a celebrity guest! When you attend the conference in person or via livestream, you’ll have the chance to hear this …
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Patient-Relevant Bleeding Events Among Patients Taking Anticoagulant Medication was recently presented at the International Society on Thrombosis and Haemostasis’ (ISTH) annual meeting in Montreal. Anthos Therapeutics, in collaboration with StopAfib.org and the National Blood Clot Alliance (NBCA), presented new data from a survey of afib and VTE patients about the impact of so-called “minor bleeding” on …
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Some new tools are available for your use in deciding whether to take blood thinners. These tools come from the ENHANCE-AF (Engaging Patients to Help Achieve Increased Patient Choice and Engagement for AF Stroke Prevention) Trial that our founder helped with. The American Heart Association funded the trial, the principal investigators were at Stanford University, …
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StopAfib.org is seeking afib patients interested in participating in an advocacy training program. The training program will help prepare individuals to share patient perspectives with various audiences and participate in advocacy activities. The training will take place virtually and consist of two half-day sessions, January 19-20, 2023. Following that, if you would like to refine …
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Giving Tuesday is the time of year when people around the world support what matters most to them. That usually means giving donations to nonprofit organizations such as ours. But, we are not asking for donations for us. Instead, we are asking for your help in supporting afib research—patient-initiated and patient-driven afib research. Let me …
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Giving Tuesday is the time of year when people around the world support what matters most to them. That usually means giving donations to nonprofit organizations such as ours. But, we are not asking for donations for us. Instead, we are asking for your help in supporting afib research—patient-initiated and patient-driven afib research. Let me …
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A favorite presenter at the Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conferences for the past two years has been Professor Bianca Brundel, PhD, from the physiology department at the Amsterdam University Medical Center in The Netherlands. Dr. Brundel shared with us information on testing how toxic triggers drive afib progression and how …
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Medicare and the US Senate are investigating Medicare Advantage Plan Broker pitches on TV. Those ads feature celebrities telling you to get all the benefits you’re entitled to. In addition, those deceptive ads encourage calling a phone number where agents use bait-and-switch and other predatory and misleading tactics to get people to sign up. Hopefully, …
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We’re hearing about formulary changes, especially among anticoagulant (blood thinner) and antiarrhythmic (rhythm control) drugs. Medications that have been covered for years are being dropped from some formularies. Your plan will no longer cover those medications, and you’ll have to cover 100% of the cost yourself (or change medications). That could be costly and dangerous, …
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With the QALY App, you can get your Kardia, Apple Watch, Fitbit, and Samsung ECGs reviewed by cardiographic technicians. The QALY app was developed by a team from Stanford and Berkeley led by cardiac electrophysiologist, Dr. Marco Perez. Many of you may remember him from the 2019 patient conference where he spoke on Digital Health …
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The Heartline Study is a heart-health study from Johnson & Johnson in collaboration with Apple. The study aims to determine if an app-based heart health engagement program combined with an Apple Watch can help with earlier detection of atrial fibrillation. In addition, the study includes a heart-health engagement program paired with medication adherence tools for …
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Recently, we asked afib patients in the US to ask Medicare to preserve their ability to get a catheter ablation when needed. Unfortunately, that comment period closed in early September, but we have another opportunity to influence this. Congress can still comment. Therefore, you have another chance to make your opinion known to your Congressional …
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During National Afib Month, Join us for a Restoring Life’s Rhythm Webinar For National Atrial Fibrillation Awareness Month, I'm excited to moderate two free afib webinars being hosted by Medtronic. The September 20, 2022 webinar features Dr. Amin Al-Ahmad, Clinical Cardiac Electrophysiologist at Texas Cardiac Arrhythmia in Austin, TX. The September 24, 2022 webinar features …
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StopAfib.org has developed a Public Service Announcement (PSA) about the importance of maintaining normal sinus rhythm to reduce disease progression. The PSA launched today to run during National Atrial Fibrillation Awareness Month. It shares why it’s important to Get in Rhythm and Stay in Rhythm. To watch the PSA and learn more, go to: StopAfib.org …
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Medicare’s Proposed 40% Payment Cuts for Electrophysiologists Will Make Afib Catheter Ablations Hard to Get If you are an afib patient on Medicare (in the US and 65 or more), this is scary as afib catheter ablations may become unavailable to those who need them. We need your help urgently to reverse this proposal by …
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July 12, 2022 Summary: StopAfib.org Get in Rhythm. Stay in Rhythm. Atrial Fibrillation Patient Conference, August 5–7 in Dallas & via Livestream Reading time: 2–3 minutes StopAfib.org Atrial Fibrillation Patient Conference, August 5–7 in Dallas & via Livestream See full press release and photos at PRNewswire. DALLAS, July 12, 2022—StopAfib.org’s annual Get in Rhythm. Stay in …
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Today, we are featuring programs from our friends at the Alliance for Aging Research. Would You Like to Be an Afib Research Advocate? The Alliance for Aging Research Senior Patient and Family Caregiver Network (SP&FCN) is currently seeking patients, family caregivers, and post-doctoral researchers interested in applying to participate in their 2022 advocacy training. The network …
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We are helping a leading-edge medical technology company recruit up to 10 individuals with afib to provide feedback and input on a NEW, INNOVATIVE product they’re developing for treating afib. Participation will consist of two phases: An individual Zoom interview about your thoughts on current afib treatments, initial impression of the new product, and your …
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NOTE: This offer has expired. However, learn more about the QALY App here. With the QALY App, you can get your Kardia and Apple Watch ECGs reviewed by Cardiographic Technicians. The QALY app was developed by a team led by Dr. Marco Perez. Many of you may remember him from the 2019 patient conference where …
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Note: This offer has expired. However, learn more about the QALY app here. The QALY app is being developed by a team that includes Dr. Marco Perez. Many of you may remember him from being on our faculty for the 2019 patient conference where he spoke on Digital Health. He knows digital tools and ECGs …
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February 21, 2022 You have an incredible opportunity to shape your doctor’s understanding of your experience with afib! StopAfib.org is working with PRIME Education, part of the Everyday Health Group. PRIME is developing and delivering an afib webinar for US healthcare professionals (physicians, physician assistants, nurse practitioners, nurses, and pharmacists). To help them develop this …
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It’s American Heart Month! Have you seen the new No Time to Wait public service announcements on TV this month? We are proud to be part of this campaign to raise awareness of atrial fibrillation during American Heart Month. To learn more about this campaign, see:For millions of US adults experiencing AFib symptoms, this is …
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Do you want to attend the Afib Patient Conference, but need some help financially? If you know you can benefit from attending the Get In Rhythm. Stay In Rhythm.® Atrial Fibrillation Patient Conference August 7-9 in Dallas and would like to apply for the Annual Judy Currier Scholarship—or, you’re already attending but would like to …
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