Category Archives: Advocacy

StopAfib.org - For Patients. By Patients - Stop Atrial Fibrillation

What Atrial Fibrillation Patients Need to Know About the Coronavirus (COVID-19)

What Do Afib Patients Need to Know About the Coronavirus (COVID-19)? UPDATED 8-26-2020: Please visit here for the replay of the webinar based on the concerns you shared with us: An Expert’s Perspective On When It Is Safe To Consider Having A Catheter Ablation. We are very concerned about you and your family during these …

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StopAfib.org - For Patients. By Patients - Stop Atrial Fibrillation

Atrial Fibrillation Awareness Takes Center Stage on National TV on April 10, 2019

On Wednesday, April 10, the Dr. Phil Show, the #1 daytime TV show with millions of viewers, will focus on atrial fibrillation. We couldn’t be more excited for this opportunity to raise awareness about afib, and for Mellanie True Hills, our founder at StopAfib.org, to talk about what it’s like to live with it. It’s …

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StopAfib.org - For Patients. By Patients - Stop Atrial Fibrillation

The Transformative Power of Understanding & Trust in Atrial Fibrillation Care, Journal of Cardiovascular Electrophysiology

Last fall, Mellanie True Hills, founder of StopAfib.org, reached out to the atrial fibrillation patient community to ask, “What would you tell your healthcare providers about living with afib?” More than 1,000 of you provided thoughts for sharing with doctors attending her Opening Keynote speech at the Afib Main Event at the American Heart Association …

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StopAfib.org - For Patients. By Patients - Stop Atrial Fibrillation

Has Your Insurance Company Forced You to Change Medications?

We’re hearing more and more stories about insurance companies forcing patients to change from medications they are doing well on to less expensive medications, in spite of their wishes or those of their doctors. While that usually is not a problem, we’re hearing about more and more adverse events resulting from these medication changes (non-medical …

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StopAfib.org - For Patients. By Patients - Stop Atrial Fibrillation

Become an Atrial Fibrillation Advocate Mentor

UPDATE: All slots are filled. Thank you. As a member of the Alliance for Aging Research’s Senior Patient and Family Caregiver Network Advisory Council, we at StopAfib.org have the opportunity to nominate atrial fibrillation advocates to participate in a six-month research-advocacy training program to empower senior patients and family caregivers to engage in patient-centered outcomes …

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StopAfib.org - For Patients. By Patients - Stop Atrial Fibrillation

“A Year Without a Stroke” Atrial Fibrillation Public Service Campaign, From the Alliance for Aging Research

Our friends at the Alliance for Aging Research have kicked off their A Year Without a Stroke public service campaign, which features the real stories of people who have experienced and seen first-hand how serious AFib-related strokes can be. StopAfib.org CEO Mellanie True Hills is pleased to be a part of this campaign, which also …

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StopAfib.org - For Patients. By Patients - Stop Atrial Fibrillation

Reports Making Cryptogenic Strokes a National Health Priority Include Strokes from Atrial Fibrillation

The cause cannot be pinpointed in 25–30 per cent of strokes. Many of these strokes, called cryptogenic strokes, are due to undiagnosed atrial fibrillation, which increases the risk of stroke by 500%. StopAfib.org participated in a conference convened by the American Heart Association to make cryptogenic strokes a national health priority, and we participated in …

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Sign Against Stroke in Atrial Fibrillation Task Force Launches Afib Patient Empowerment Materials

For World Stroke Day, the Sign Against Stroke (SAS) in Atrial Fibrillation Task Force launched patient empowerment materials for afib patients, family members, and healthcare providers. StopAfib.org is co-chair of the SAS Task Force and chaired development of these materials. Read more about these patient empowerment materials, which include infographic posters, downloadable PDFs, and videos, …

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