Category Archives: Advocacy

StopAfib.org - For Patients. By Patients - Stop Atrial Fibrillation

Afib Patient Advocates Needed!

StopAfib.org is seeking afib patients interested in participating in an advocacy training program. The training program will help prepare individuals to share patient perspectives with various audiences and participate in advocacy activities. The training will take place virtually and consist of two half-day sessions, January 19-20, 2023. Following that, if you would like to refine …

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Support Patient-Driven Afib Research for Giving Tuesday

Giving Tuesday is the time of year when people around the world support what matters most to them. That usually means giving donations to nonprofit organizations such as ours. But, we are not asking for donations for us. Instead, we are asking for your help in supporting afib research—patient-initiated and patient-driven afib research. Let me …

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Support Patient-Driven Afib Research for Giving Tuesday

Giving Tuesday is the time of year when people around the world support what matters most to them. That usually means giving donations to nonprofit organizations such as ours. But, we are not asking for donations for us. Instead, we are asking for your help in supporting afib research—patient-initiated and patient-driven afib research. Let me …

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Patient-Funded Research to Help Prevent Afib

A favorite presenter at the Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conferences for the past two years has been Professor Bianca Brundel, PhD, from the physiology department at the Amsterdam University Medical Center in The Netherlands. Dr. Brundel shared with us information on testing how toxic triggers drive afib progression and how …

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StopAfib.org - For Patients. By Patients - Stop Atrial Fibrillation

URGENT: Please Ask Congress to Tell Medicare to Preserve Your Ability to Get an Ablation

Recently, we asked afib patients in the US to ask Medicare to preserve their ability to get a catheter ablation when needed. Unfortunately, that comment period closed in early September, but we have another opportunity to influence this. Congress can still comment. Therefore, you have another chance to make your opinion known to your Congressional …

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StopAfib.org - For Patients. By Patients - Stop Atrial Fibrillation

September is National Atrial Fibrillation Awareness Month

StopAfib.org has developed a Public Service Announcement (PSA) about the importance of maintaining normal sinus rhythm to reduce disease progression. The PSA launched today to run during National Atrial Fibrillation Awareness Month. It shares why it’s important to Get in Rhythm and Stay in Rhythm. To watch the PSA and learn more, go to: StopAfib.org …

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StopAfib.org - For Patients. By Patients - Stop Atrial Fibrillation

StopAfib.org Atrial Fibrillation Patient Conference Takes Place Aug. 5–7 in Dallas & via Livestream

July 12, 2022 Summary: StopAfib.org Get in Rhythm. Stay in Rhythm. Atrial Fibrillation Patient Conference, August 5–7 in Dallas & via Livestream Reading time: 2–3 minutes StopAfib.org Atrial Fibrillation Patient Conference, August 5–7 in Dallas & via Livestream See full press release and photos at PRNewswire. DALLAS, July 12, 2022—StopAfib.org’s annual Get in Rhythm. Stay in …

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StopAfib.org - For Patients. By Patients - Stop Atrial Fibrillation

Alliance for Aging Research Opportunity & Resources

Today, we are featuring programs from our friends at the Alliance for Aging Research. Would You Like to Be an Afib Research Advocate? The Alliance for Aging Research Senior Patient and Family Caregiver Network (SP&FCN) is currently seeking patients, family caregivers, and post-doctoral researchers interested in applying to participate in their 2022 advocacy training. The network …

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