Category Archives: Advocacy - For Patients. By Patients - Stop Atrial Fibrillation

The Transformative Power of Understanding & Trust in Atrial Fibrillation Care, Journal of Cardiovascular Electrophysiology

Last fall, Mellanie True Hills, founder of, reached out to the atrial fibrillation patient community to ask, “What would you tell your healthcare providers about living with afib?” More than 1,000 of you provided thoughts for sharing with doctors attending her Opening Keynote speech at the Afib Main Event at the American Heart Association …

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Has Your Insurance Company Forced You to Change Medications?

We’re hearing more and more stories about insurance companies forcing patients to change from medications they are doing well on to less expensive medications, in spite of their wishes or those of their doctors. While that usually is not a problem, we’re hearing about more and more adverse events resulting from these medication changes (non-medical …

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Become an Atrial Fibrillation Advocate Mentor

UPDATE: All slots are filled. Thank you. As a member of the Alliance for Aging Research’s Senior Patient and Family Caregiver Network Advisory Council, we at have the opportunity to nominate atrial fibrillation advocates to participate in a six-month research-advocacy training program to empower senior patients and family caregivers to engage in patient-centered outcomes …

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“A Year Without a Stroke” Atrial Fibrillation Public Service Campaign, From the Alliance for Aging Research

Our friends at the Alliance for Aging Research have kicked off their A Year Without a Stroke public service campaign, which features the real stories of people who have experienced and seen first-hand how serious AFib-related strokes can be. CEO Mellanie True Hills is pleased to be a part of this campaign, which also …

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Reports Making Cryptogenic Strokes a National Health Priority Include Strokes from Atrial Fibrillation

The cause cannot be pinpointed in 25–30 per cent of strokes. Many of these strokes, called cryptogenic strokes, are due to undiagnosed atrial fibrillation, which increases the risk of stroke by 500%. participated in a conference convened by the American Heart Association to make cryptogenic strokes a national health priority, and we participated in …

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Sign Against Stroke in Atrial Fibrillation Task Force Launches Afib Patient Empowerment Materials

For World Stroke Day, the Sign Against Stroke (SAS) in Atrial Fibrillation Task Force launched patient empowerment materials for afib patients, family members, and healthcare providers. is co-chair of the SAS Task Force and chaired development of these materials. Read more about these patient empowerment materials, which include infographic posters, downloadable PDFs, and videos, …

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For the 9th Annual Atrial Fibrillation Month, Raises Awareness, Educates, and Names Medical Advisors

For the 9th annual Atrial Fibrillation Awareness Month, was part of a collaboration with American Heart Association to raise awareness of afib through a billboard spot in Times Square. We also named new members to our Global Medical Advisory Board and have been publishing the videos from our 2015 National Atrial Fibrillation Patient Conference. …

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Patient-Centered Care Those Living with Atrial Fibrillation Endorsed by Medical Societies

Our latest EP Lab Digest article focuses on the new European Heart Rhythm Association consensus document about patient-centered care. To learn what is being recommended to doctors about treating patients with atrial fibrillation, see: New Consensus Document Embraces Patient-Centered Approach to Atrial Fibrillation

Read More Times Square Billboard for National Atrial Fibrillation Awareness Month

We are so excited to announce that, which was co-created by American Heart Association and and supported by Janssen Pharmaceuticals, is being promoted in Times Square during National Atrial Fibrillation Awareness Month in September. Below is a video of it playing in Times Square and below that is what the billboard spot actually looks like onscreen. …

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