Last fall, Mellanie True Hills, founder of StopAfib.org, reached out to the atrial fibrillation patient community to ask, “What would you tell your healthcare providers about living with afib?” More than 1,000 of you provided thoughts for sharing with doctors attending her Opening Keynote speech at the Afib Main Event at the American Heart Association …
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We’re hearing more and more stories about insurance companies forcing patients to change from medications they are doing well on to less expensive medications, in spite of their wishes or those of their doctors. While that usually is not a problem, we’re hearing about more and more adverse events resulting from these medication changes (non-medical …
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UPDATE: All slots are filled. Thank you. As a member of the Alliance for Aging Research’s Senior Patient and Family Caregiver Network Advisory Council, we at StopAfib.org have the opportunity to nominate atrial fibrillation advocates to participate in a six-month research-advocacy training program to empower senior patients and family caregivers to engage in patient-centered outcomes …
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Our friends at the Alliance for Aging Research have kicked off their A Year Without a Stroke public service campaign, which features the real stories of people who have experienced and seen first-hand how serious AFib-related strokes can be. StopAfib.org CEO Mellanie True Hills is pleased to be a part of this campaign, which also …
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How was your atrial fibrillation (or atrial flutter) discovered? Please take our brief survey — only 11 quick questions, which should take about a minute — to tell us about how it was found. This survey is a collaboration of StopAfib.org and the Atrial Fibrillation Association. We both greatly appreciate your help. Take the survey …
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The cause cannot be pinpointed in 25–30 per cent of strokes. Many of these strokes, called cryptogenic strokes, are due to undiagnosed atrial fibrillation, which increases the risk of stroke by 500%. StopAfib.org participated in a conference convened by the American Heart Association to make cryptogenic strokes a national health priority, and we participated in …
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For World Stroke Day, the Sign Against Stroke (SAS) in Atrial Fibrillation Task Force launched patient empowerment materials for afib patients, family members, and healthcare providers. StopAfib.org is co-chair of the SAS Task Force and chaired development of these materials. Read more about these patient empowerment materials, which include infographic posters, downloadable PDFs, and videos, …
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For the 9th annual Atrial Fibrillation Awareness Month, StopAfib.org was part of a collaboration with American Heart Association to raise awareness of afib through a billboard spot in Times Square. We also named new members to our Global Medical Advisory Board and have been publishing the videos from our 2015 National Atrial Fibrillation Patient Conference. …
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Our latest EP Lab Digest article focuses on the new European Heart Rhythm Association consensus document about patient-centered care. To learn what is being recommended to doctors about treating patients with atrial fibrillation, see: New Consensus Document Embraces Patient-Centered Approach to Atrial Fibrillation
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We are so excited to announce that MyAFibExperience.org, which was co-created by American Heart Association and StopAfib.org and supported by Janssen Pharmaceuticals, is being promoted in Times Square during National Atrial Fibrillation Awareness Month in September. Below is a video of it playing in Times Square and below that is what the billboard spot actually looks like onscreen. …
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