In this study, researchers at UMass Chan Medical School are inviting African American and other Black patients with atrial fibrillation (afib) to participate in a program about the power of storytelling. Specifically, they want to see if watching patients tell their stories of successfully taking anticoagulants (blood thinners) can help other patients start and continue …
A new clinical trial is enrolling afib patients who, because of your doctor’s decision or your preference, are not currently taking an anticoagulant (blood thinner) to reduce the risk of clots and stroke. The LILAC – TIMI 76 trial will evaluate a monthly medication from a new class of anticoagulants. This clinical trial is recruiting …
People living with afib often ask if it is safe and effective to take blood thinners as “pill in the pocket” medications. We don’t have the answer yet. However, a new study seeks to answer that question. In the survey that many of you responded to in 2021, you expressed an interest in participating in …
StopAfib.org applauds the American College of Cardiology (ACC), American Heart Association (AHA), American College of Clinical Pharmacy (ACCP), and Heart Rhythm Society (HRS) for the newly released 2023 ACC/AHA/ACCP/HRS Guideline for the Diagnosis and Management of Atrial Fibrillation: A Report of the American College of Cardiology/American Heart Association Joint Committee on Clinical Practice Guidelines. Learn …
Medicare will negotiate the prices of two afib drugs and is holding Virtual Listening Sessions. They seek to understand the patient's experience with these medications and their alternatives. StopAfib.org has applied to speak on behalf of the afib patient community. We are launching a survey to inform our comments. We would like to understand your …
If you’re new to our community, please check out these tools when deciding whether to take blood thinners. Even if you have used them previously, things may have changed about your afib, so it may be worth looking at them again. These tools come from the ENHANCE-AF (Engaging Patients to Help Achieve Increased Patient Choice …
Patient-Relevant Bleeding Events Among Patients Taking Anticoagulant Medication was recently presented at the International Society on Thrombosis and Haemostasis’ (ISTH) annual meeting in Montreal. Anthos Therapeutics, in collaboration with StopAfib.org and the National Blood Clot Alliance (NBCA), presented new data from a survey of afib and VTE patients about the impact of so-called “minor bleeding” on …
Some new tools are available for your use in deciding whether to take blood thinners. These tools come from the ENHANCE-AF (Engaging Patients to Help Achieve Increased Patient Choice and Engagement for AF Stroke Prevention) Trial that our founder helped with. The American Heart Association funded the trial, the principal investigators were at Stanford University, …
This survey seeks to understand your participation with your healthcare provider regarding decision-making about afib stroke prevention. To participate in this anonymous survey, you must have afib, be at least 18 years old, live in the United States, and be contemplating a decision about afib stroke prevention treatment, or have made a decision on that …
Update: This survey is now closed. We would appreciate your help with a survey to help a researcher at Northwestern University. He is working on developing a study into the use of blood thinners on an “as needed” basis compared to continuous use of blood thinners. If funded, the study would use a smart watch …