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Resources for Atrial Fibrillation Patients and Caregivers

The following resources cover general atrial fibrillation information as well afib patient discussion forums, blogs and social media, afib guidelines, medications, patient prescription assistance, patient perspectives, patient sites, industry patient resources, physician resources, popular articles and videos, related conditions, and partner organizations.

Atrial Fibrillation General Resources

• American Heart Association Atrial Fibrillation Information
• My AFib Experience^®—from the American Heart Association and StopAfib.org
• American Stroke Association
• American College of Cardiology Cardiosmart Atrial Fibrillation Patient Resources
• AntiCoagulation Europe
• Atrial Fibrillation Association UK and Atrial Fibrillation Association US
• Cleveland Clinic AF Center
• Clot Care Anticoagulation Resource
• European Heart Rhythm Association Atrial Fibrillation Patient Site—Available in multiple languages
• Everyday Health Atrial Fibrillation Center
• Healthline Atrial Fibrillation Resources
• Heart Rhythm Society Atrial Fibrillation Patient Site
• Hearts4Heart Australia
• Mayo Clinic Atrial Fibrillation
• MedicineNet.com Atrial Fibrillation Index
• Medline Plus Health Topic — Atrial Fibrillation
• Medscape Atrial Fibrillation Resource Center
• National Blood Clot Alliance
• Society of Thoracic Surgeons
• Stanford Guide to AFib Stroke Prevention (AFibGuide Shared Decision-Making Tool)
• Stanford Understanding AFib & Stroke Prevention (includes Blood Thinner Decision Worksheet)
• The AFIB Report
• TheHeart.org Medscape Atrial Fibrillation Site
• WebMD Atrial Fibrillation Health Center

Atrial Fibrillation Reports and Coalitions

• Action for Stroke Prevention—How Can We Avoid a Stroke Crisis in Europe, October 2012, Atrial Fibrillation-Related Stroke: An Avoidable Burden, October 2012, Atrial Fibrillation-Related Stroke across Europe: A Preventable Problem, October 2012, Atrial Fibrillation-Related Stroke across the Asia-Pacific Region: A Preventable Problem, October 2012, Atrial Fibrillation-Related Stroke across Latin America: A Preventable Problem, October 2012, How Can We Avoid a Stroke Crisis in Latin America, August 2011 (English, Spanish, and Brazilian Portuguese), How Can We Avoid a Stroke Crisis in the Asia-Pacific Region, May 2011, and How Can We Avoid a Stroke Crisis, December 2009, a report launched in the European Parliament
• Agency for Healthcare Research and Quality (AHRQ)—Catheter Ablation for Treatment of Atrial Fibrillation, April 2015, Treatment of Atrial Fibrillation, June 2013, Comparative Effectiveness of Radiofrequency Catheter Ablation for Atrial Fibrillation, July 2009
• Alliance for Aging Research—Includes AFib Videos, AFib Optimal Treatment Task Force Consensus Statement on Assessing Stroke and Bleeding Risk in AFib, Stroke Prevention Resources, Surveys, The Silver Books, and the Year Without a Stroke Campaign
• Center for Medical Technology Policy—Effectiveness Guidance Document on Methodological Recommendations for Comparative Effectiveness Research on the Treatment of Atrial Fibrillation
• Global Atrial Fibrillation Patient Charter and Sign Against Stroke in Atrial Fibrillation Campaign—Sign the Global Atrial Fibrillation Patient Charter to show your support for wiping out AF-related strokes
• Institute for Clinical and Economic Review—Appraisal of Atrial Fibrillation Management Options

Blogs and Social Media

• Atrial Fibrillation Blog—For patient comments about living with afib
• Atrial Fibrillation Event Calendar
• Dr. John M Blog—Electrophysiologist who blogs about afib and has had afib, and is the author of the book, The Haywire Heart
• StopAfib.org on Facebook
• StopAfib.org on Twitter
• StopAfib.org YouTube Channel
• The Athlete’s Heart Blog—Heart surgeon who is a triathlete

Discussion Forums

• My AFib Experience Forums—from the American Heart Association and StopAfib.org
• StopAfib.org Forum—For afib patients by afib patients
• Atrial Fibrillation Information Exchange Group on Facebook
• Atrial Fibrillation Support on Facebook
• Lone Atrial Fibrillation Forum—Lone atrial fibrillation, including treatment with diet and supplements
• MedHelp Forums Heart Rhythm Community

Government Resources

• ClinicalTrials.gov
• European Medicines Agency
• US FDA (Food and Drug Administration) Patient Network
• UK NICE (National Institute for Health and Care Excellence) Patient Resources

Guidelines

• 2014 AHA/ACC/HRS Guideline for the Management of Patients with Atrial Fibrillation
• 2019 AHA/ACC/HRS Focused Update of the 2014 AHA/ACC/HRS Guideline for the Management of Patients With Atrial Fibrillation
• 2020 Canadian Cardiovascular Society/Canadian Heart Rhythm Society Comprehensive Guidelines for the Management of Atrial Fibrillation
• Antithrombotic Therapy for Atrial Fibrillation: CHEST Guideline and Expert Panel Report 2018
• 2020 ESC Guidelines for the diagnosis and management of atrial fibrillation
• 2017 HRS/EHRA/ECAS/APHRS/SOLAECE Expert Consensus Statement on Catheter and Surgical Ablation of Atrial Fibrillation

Industry Atrial Fibrillation Patient Resources

• Abbott Atrial Fibrillation Answers Patient Education
• AtriCure Patient Education
• Bayer Xarelto Non-US Patient Info
• Biosense Webster Get Smart About Afib Patient Info
• Boehringer Ingelheim Pradaxa US Patient Info and Non-US Patient Info
• Boston Scientific Atrial Fibrillation Patient Education
• Bristol-Myers Squibb-Pfizer Alliance Eliquis US Patient Info
• CardioFocus Patient Info
• Daiichi Sankyo Patient Assistance Programs
• GSK Rythmol Patient Assistance
• Janssen Xarelto Carepath US Patient Info
• Medtronic Atrial Fibrillation Patient Info—Patient line: 1 (877) 526-7890
• Pfizer Tikosyn Patient Info
• Sanofi Multaq US Patient Info

Medication Information & Interactions

• Drug Digest
• Drug Information Online
• Medline Plus Drug and Supplements
• PTINR.com Vitamin K Finder—Resources for those on Coumadin® or warfarin, including a Vitamin K Finder
• WebMD Drugs & Interactions

Most Popular Articles & Videos

• Clinical Trials for Atrial Fibrillation Patients—StopAfib.org lists important afib clinical trials
• How to Access the StopAfib.org Library—the library is home to a wealth of video content covering afib from A to Z, including recordings of the annual Get in Rhythm. Stay in Rhythm.^® Atrial Fibrillation Patient Conferences from 2013 to the present, the Get Back to Care Webinar Series, the Afib Master Class, and a wealth of other video content
• Transcript of Afib Chat with Cleveland Clinic Atrial Fibrillation Experts on December 14, 2018
• Transcript of Afib Chat with Cleveland Clinic Atrial Fibrillation Experts on March 2, 2018
• Transcript of Afib Chat with Cleveland Clinic Atrial Fibrillation Experts on December 15, 2017
• Transcript of Afib Chat with Cleveland Clinic Atrial Fibrillation Experts on March 6, 2017
• Transcript of Afib Chat with Cleveland Clinic Atrial Fibrillation Experts on May 29, 2015
• Video of Afib Chat with Cleveland Clinic Atrial Fibrillation Experts on May 16, 2014
• Transcript of Afib Chat with Cleveland Clinic Atrial Fibrillation Experts on December 17, 2013
• Transcript of Afib Chat with Cleveland Clinic Atrial Fibrillation Experts on May 31, 2013
• Transcript of Afib Chat with Cleveland Clinic Atrial Fibrillation Experts on October 31, 2012
• Transcript of Afib Chat with Cleveland Clinic Atrial Fibrillation Experts on March 2, 2012

Patient Assistance

• Medicare.gov, The Official US Government Site for Medicare—Includes Medicare Plan Finder, Costs for Medicare Drug Coverage, and Extra Help Program
• Medicine Assistance Tool—Telephone 1-571-350-8643—Referral to patient prescription assistance programs, sponsored by the pharmaceutical industry association (PhRMA)
• Patient Advocate Foundation—Toll-free: 1-800-532-5274—Solves insurance and healthcare access issues for patients, including providing help for the uninsured and underinsured. Matters of the Heart provides a wealth of insurance and patient assistance information specifically for those with heart disease.
• RxResource.org—Resources on prescription drug coverage and prescription assistance programs

Patient Books Written By Doctors

Note: These are not affiliate links.

• The Afib Cure: Get Off Your Medications, Take Control of Your Health, and Add Years to Your Life—by Dr. John Day and Dr. Jared Bunch
• Atrial Fibrillation Explained: Understanding the Next Cardiac Epidemic—by Dr. Warrick Bishop
• The Haywire Heart: How too much exercise can kill you, and what you can do to protect your heart—by Dr. John Mandrola and others
• Restart Your Heart: The Playbook for Thriving With Afib—by Dr. Aseem Desai
• Your Complete Guide To Afib: The Essential Manual For Every Patient With Atrial Fibrillation—by Dr. Percy Morales

Patient Perspectives Articles

• New Consensus Document Embraces Patient-Centered Approach to Atrial Fibrillation
• Helping Afib Patients Get in Rhythm and Stay in Rhythm at the 2015 Get in Rhythm Patient Conference
• National Alliance of Integrated Afib Centers: The Next Level of Afib Treatment
• A Matter of Trust: How to Build Adherence with Afib Patients
• Gender Matters: Why Afib Is More Fatal for Women
• EP Lab Digest Publishes “Expert Roundtable Fills in Vital Pieces of Afib Treatment Puzzle: The Afib Optimal Treatment Task Force and the Expert Working Group”
• Global Atrial Fibrillation Patient Charter and the Sign Against Stroke in AF Campaign Featured in EP Lab Digest
• How Social Media Helps Educate Afib Patients: An Atrial Fibrillation Patient Perspective
• Stuck in the Middle: Afib Patients on Rate Control
• Stopping Atrial Fibrillation is Big News
• Atrial Fibrillation: The Patient Perspective to Better Care
• Bridging the Afib Communications Gap: An Atrial Fibrillation Patient Perspective
• Patient Perspectives on Living with Atrial Fibrillation

Patient Sites

• A-fib.com—Steve Ryan
• Cycling with AF
• Living With Atrial Fibrillation Blog—Travis Van Slooten
• My Afib Heart
• Pam and Dan Walter
• Russ Ward

Phone Apps

• AfibAlert Device Companion App—Download from Google Play or Apple App Store
• Afib Companion 90-day educational and exercise program for afib patients—Download from Google Play or Apple App Store
• Cardiogram—Download from Google Play for Android Wear or App Store for Apple Watch
• CardioVisual educational heart videos in an app designed by cardiologists—Download from Google Play or Apple App Store
• Kardia/AliveCor (requires Kardia Mobile EKG monitoring device)—Download from Google Play or Apple App Store
• Medisafe Medication Tracker (Mellanie’s favorite)—Download from Google Play or Apple App Store
• Mango Health Medication Tracker—Download from Google Play or Apple App Store
• MyAF—Download from Google Play or Apple App Store (available in Europe and UK only; awaiting approval by US and other regulatory authorities)

Physician Resources

• AF VT VF Summit
• American Academy of Family Physicians
• American Association for Thoracic Surgery
• American College of Chest Physicians
• American College of Clinical Pharmacy
• American College of Emergency Physicians
• American College of Physicians
• Annals of Thoracic Surgery
• Asia Pacific Heart Rhythm Society
• Atrial Fibrillation Symposium
• Cardiovascular Digital Health Journal
• Circulation
• Circulation: Arrhythmia and Electrophysiology
• Journal of Atrial Fibrillation
• ClinicalTrials.gov
• Dallas Leipzig Conference
• The Doctor’s Channel—Cardiology
• EP Live Symposium
• European Heart Rhythm Association
• European Society of Cardiology
• Heart Rhythm Society
• The International Society for Minimally Invasive Cardiothoracic Surgery
• International Symposium on Left Atrial Appendage
• Journal of the American College of Cardiology
• JACC: Clinical Electrophysiology
• Journal of Cardiovascular Electrophysiology
• Journal of Interventional Cardiac Electrophysiology
• Journal of Thoracic and Cardiovascular Surgery
• Kansas City Heart Rhythm Symposium
• Society of Thoracic Surgeons
• Western Atrial Fibrillation Symposium

Related Condition — Diabetes

• American Diabetes Association
• Diabetes Sisters
• International Diabetes Federation—Features an extensive list of diabetes organizations around the globe

Related Condition — Heart Disease

• 7 Steps to a Healthy Heart by The Association of Black Cardiologists
• Health eHeart Study
• HeartValveSurgery.com
• Hypertrophic Cardiomyopathy Association
• Mended Hearts
• National Forum for Heart Disease and Stroke Prevention
• Preventive Cardiovascular Nurses Association
• Pulmonary Hypertension Association
• WomenHeart: The National Coalition for Women with Heart Disease
• World Heart Federation—Features an extensive list of heart disease organizations around the globe

Related Condition — Sleep Apnea

• American Sleep Apnea Association—Includes a CPAP Assistance Program
• CPAPTalk.com Forum
• MyApnea.Org
• SleepGuide Forum

StopAfib.org Relationships Not Listed Elsewhere

• The International Alliance of Patients’ Organizations
• The Louise Batz Patient Safety Foundation

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