Have you been diagnosed with cardiac amyloidosis? If so, you are invited to complete an anonymous survey (less than 15 minutes) to help researchers at the University of Pennsylvania Perelman School of Medicine (Philadelphia, PA, USA). They seek to understand how atrial fibrillation affects symptoms, daily functioning, and quality of life in individuals with cardiac amyloidosis …
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In this study, researchers at UMass Chan Medical School are inviting African American and other Black patients with atrial fibrillation (afib) to participate in a program about the power of storytelling. Specifically, they want to see if watching patients tell their stories of successfully taking anticoagulants (blood thinners) can help other patients start and continue …
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A new clinical trial is enrolling afib patients who, because of your doctor’s decision or your preference, are not currently taking an anticoagulant (blood thinner) to reduce the risk of clots and stroke. The LILAC – TIMI 76 trial will evaluate a monthly medication from a new class of anticoagulants. This clinical trial is recruiting …
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People living with afib often ask if it is safe and effective to take blood thinners as “pill in the pocket” medications. We don’t have the answer yet. However, a new study seeks to answer that question. In the survey that many of you responded to in 2021, you expressed an interest in participating in …
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StopAfib.org is a member of the Partnership to Advance Cardiovascular Health (PACH) coalition. PACH is conducting a patient advocacy training program called the Cardiometabolic Leadership Academy, or CLA, for advocates across various cardiometabolic diseases, including afib. Patients will be taught how to raise their voices to advocate for open access to treatments. The CLA is …
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StopAfib.org, joined by a task force of experts representing the nation’s leading cardiology and cardiothoracic surgery organizations, is calling for renewed efforts to address health disparities and improve care for people living with atrial fibrillation. Recognizing the need for more equitable care, StopAfib.org convened the task force to develop a new call-to-action report, “Addressing Health …
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A favorite presenter at the Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conferences for the past three years has been Professor Bianca Brundel, PhD, from the physiology department at the Amsterdam University Medical Center in The Netherlands. Dr. Brundel shared with us information on testing how toxic triggers drive afib progression and how …
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StopAfib.org applauds the American College of Cardiology (ACC), American Heart Association (AHA), American College of Clinical Pharmacy (ACCP), and Heart Rhythm Society (HRS) for the newly released 2023 ACC/AHA/ACCP/HRS Guideline for the Diagnosis and Management of Atrial Fibrillation: A Report of the American College of Cardiology/American Heart Association Joint Committee on Clinical Practice Guidelines. Learn …
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This month, at the American Heart Association Scientific Sessions held in Philadelphia, several important Afib Late-Breaking Clinical Trials were presented that I want to share with you. These include AZALEA, ARTESiA, and NOAH-AFNET 6. We have posted news stories about them, which you can access here: Afib News from the American Heart Association Scientific Sessions …
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Medicare will negotiate the prices of two afib drugs and is holding Virtual Listening Sessions. They seek to understand the patient's experience with these medications and their alternatives. StopAfib.org has applied to speak on behalf of the afib patient community. We are launching a survey to inform our comments. We would like to understand your …
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