StopAfib.org is a member of the Partnership to Advance Cardiovascular Health (PACH) coalition. PACH is conducting a patient advocacy training program called the Cardiometabolic Leadership Academy, or CLA, for advocates across various cardiometabolic diseases, including afib. Patients will be taught how to raise their voices to advocate for open access to treatments. The CLA is …
Read MoreAuthor Archives: StopAfib.org
StopAfib.org, joined by a task force of experts representing the nation’s leading cardiology and cardiothoracic surgery organizations, is calling for renewed efforts to address health disparities and improve care for people living with atrial fibrillation. Recognizing the need for more equitable care, StopAfib.org convened the task force to develop a new call-to-action report, “Addressing Health …
Read MoreWe've worked with the NY Times and they now want to hear your experiences with PBMs (Pharmacy Benefits Managers). Have you been overcharged or had other issues with them? Please use this link to share your experience. Help us flood them with our stories about bad experiences with the PBMs! Thanks for your help. To your …
Read MoreA favorite presenter at the Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conferences for the past three years has been Professor Bianca Brundel, PhD, from the physiology department at the Amsterdam University Medical Center in The Netherlands. Dr. Brundel shared with us information on testing how toxic triggers drive afib progression and how …
Read MoreStopAfib.org applauds the American College of Cardiology (ACC), American Heart Association (AHA), American College of Clinical Pharmacy (ACCP), and Heart Rhythm Society (HRS) for the newly released 2023 ACC/AHA/ACCP/HRS Guideline for the Diagnosis and Management of Atrial Fibrillation: A Report of the American College of Cardiology/American Heart Association Joint Committee on Clinical Practice Guidelines. Learn …
Read MoreSince today is Giving Tuesday, we’re asking for your help. Giving Tuesday is the time of year when people around the world support what matters most to them. We’re not asking for donations for us but instead are asking for your support for patient-driven afib research. At the Get in Rhythm. Stay in Rhythm.® Atrial …
Read MoreThis month, at the American Heart Association Scientific Sessions held in Philadelphia, several important Afib Late-Breaking Clinical Trials were presented that I want to share with you. These include AZALEA, ARTESiA, and NOAH-AFNET 6. We have posted news stories about them, which you can access here: Afib News from the American Heart Association Scientific Sessions …
Read MoreMedicare will negotiate the prices of two afib drugs and is holding Virtual Listening Sessions. They seek to understand the patient's experience with these medications and their alternatives. StopAfib.org has applied to speak on behalf of the afib patient community. We are launching a survey to inform our comments. We would like to understand your …
Read MoreFor National Atrial Fibrillation Awareness Month, I'm excited to moderate two free afib webinars being hosted by Medtronic. The September 26 webinar features Dr. Devi Nair, Director, Cardiac Electrophysiology & Research, St. Bernards Medical Center, White River Medical Center in Jonesboro, AR. The September 30 webinar features Dr. Nicholas Skipitaris, Western Regional Director, Cardiac Electrophysiology, …
Read MoreDo you plan to have an afib catheter ablation? By joining the VIBRANT-AF Study before your catheter ablation, you can contribute your data to an effectiveness study that will improve the care of afib patients having catheter ablations. This study is being done at the University of California at San Francisco by Dr. Greg Marcus, …
Read More