Resources for Atrial Fibrillation Patients and Caregivers

The following resources cover general atrial fibrillation information as well afib patient discussion forums, blogs and social media, afib guidelines, medications, patient prescription assistance, patient sites, industry patient resources, physician resources, related conditions, and partner organizations.

Atrial Fibrillation General Resources

Atrial Fibrillation Coalitions and Reports

Action for Stroke Prevention — How Can We Avoid a Stroke Crisis, a report launched in the European Parliament, How Can We Avoid a Stroke Crisis in the Asia-Pacific Region and How Can We Avoid a Stroke Crisis in Latin America, available in English, Spanish, and Brazilian Portuguese
AF AWARE Initiative
AF Stat Coalition — Numerous resources, including AF Stat Call to Action, Medicare and Atrial Fibrillation: Consequences in Cost and Care, Out of Sync: The State of Afib in America, and AFib in America: State Impact Reports
Alliance for Aging Research — The Silver Book: Thrombosis
Center for Medical Technology Policy — Effectiveness Guidance Document on Methodological Recommendations for Comparative Effectiveness Research on the Treatment of Atrial Fibrillation
Facing AFib
Global Atrial Fibrillation Patient Charter and Sign Against Stroke in Atrial Fibrillation Campaign — Sign the Global Atrial Fibrillation Patient Charter to show your support for wiping out AF-related strokes
Institute for Clinical and Economic Review — Appraisal of Atrial Fibrillation Management Options
Team AFib — Access AFib InSight, webinars, and other resources

Blogs and Social Media

Atrial Fibrillation Blog — For patient comments about living with afib
Atrial Fibrillation Daily, Heart Daily, and Stroke Daily — Online newspapers based on StopAfib's Twitter Lists
Atrial Fibrillation Event Calendar
Dr. John M Blog — Electrophysiologist who blogs about afib and has had afib
MyLifeLog — Patient and doctor tool for tracking afib medical history and experiences
StopAfib.org on Facebook
StopAfib.org on Twitter
StopAfib.org Twitter Resources to Follow
StopAfib.org YouTube Channel
The Athlete's Heart Blog — Heart surgeon who is a triathlete

Discussion Forums

A-fibcures — Discuss non-pharmaceutical afib cures
Afib 5Box Forum — For 5-Box minimally invasive maze procedure alums
AFIB Support Group — Atrial fibrillation support group
Atrial Fibrillation Support Forum on Facebook
Daily Strength Afib Support — Daily Strength afib forum and journals
Lone Atrial Fibrillation — Lone atrial fibrillation, including treatment with diet and supplements
MedHelp Forums: Heart Rhythm Community and Heart Rhythm Forum (Expert)
P Atrial FibSupport — Support for all afib patients
StopAfib.org Forums — For afib patients by afib patients
UK Atrial Fibrillation Association Forum — UK Atrial Fibrillation Assn forum

Guidelines

Guidelines for the Management of Atrial Fibrillation 2010 — European Society of Cardiology (ESC), European Heart Journal, 2010; 31: 2369-2429
The Canadian Cardiovascular Society Atrial Fibrillation Guidelines 2010
2011 Focused Updates Incorporated Into the ACC/AHA/ESC 2006 Guidelines for the Management of Patients With Atrial Fibrillation — ACCF/AHA/HRS, Circulation, 2011; 123: e269-e367
2011 Focused Update on the Management of Patients With Atrial Fibrillation (Update on Dabigatran) — ACCF/AHA/HRS, Circulation, 2011; 123: 1144-1150
Simplified AHA Atrial Fibrillation Treatment Guidelines
Focused 2012 Update of the Canadian Cardiovascular Society Atrial Fibrillation Guidelines: Recommendations for Stroke Prevention and Rate/Rhythm Control, Canadian Journal of Cardiology, 2012; 28-2: 125-136
Antithrombotic Therapy and Prevention of Thrombosis: Evidence-Based Clinical Practice Guidelines — American College of Chest Physicians, Published 2012
Expert Consensus Statement on Catheter and Surgical Ablation of Atrial Fibrillation: Recommendations for Patient Selection, Procedural Techniques, Patient Management and Follow-up, Definitions, Endpoints, and Research Trial Design — HRS/EHRA/ECAS, Heart Rhythm Society, Published 2012

Industry Atrial Fibrillation Patient Resources

Biosense Webster My Fast Heartbeat Patient Info
Medtronic Atrial Fibrillation Patient Info — Patient line: 1 (877) 526-7890

Medication Information & Interactions

Drug Digest
Drug Information Online
Medline Plus Drug and Supplements
PTINR.com — Resources for those on Coumadin® or warfarin
WebMD Drugs & Interactions

Patient Assistance

Partnership for Prescription Assistance — Toll-free: 1-888-477-2669 — Referral to patient prescription assistance programs, sponsored by the pharmaceutical industry association
Patient Advocate Foundation — Toll-free: 1-800-532-5274 — Solves insurance and healthcare access issues for patients, including providing help for the uninsured and underinsured
RxResource.org — Resources on prescription drug coverage and prescription assistance programs