Resources for Atrial Fibrillation Patients and Caregivers

The following resources cover general atrial fibrillation information as well afib patient discussion forums, blogs and social media, afib guidelines, medications, patient sites, industry patient resources, physician resources, related conditions, and partner organizations.

Atrial Fibrillation General Resources

• American Heart Association Atrial Fibrillation Information
• American Stroke Association
• American College of Cardiology Cardiosource AF Clinical Collection
• AntiCoagulation Europe
• Atrial Fibrillation Association UK
• Cleveland Clinic AF Center
• Heart Rhythm Society Atrial Fibrillation Patient Site
• Journal of Atrial Fibrillation
• Mayo Clinic Atrial Fibrillation
• MedicineNet.com Atrial Fibrillation Index
• Medline Plus Interactive Afib Tutorial
• Medscape Atrial Fibrillation Resource Center
• National Blood Clot Alliance
• National Stroke Association Atrial Fibrillation Information
• The AFIB Report
• TheHeart.org Arrhythmia/EP Site
• WebMD Atrial Fibrillation Health Center

Atrial Fibrillation Coalitions and Reports

• Action for Stroke Prevention — How Can We Avoid a Stroke Crisis, a report launched in the European Parliament, and How Can We Avoid a Stroke Crisis in the Asia-Pacific Region
• AF AWARE Initiative
• AF Stat Coalition — Numerous resources, including AF Stat Call to Action, Medicare and Atrial Fibrillation: Consequences in Cost and Care, Out of Sync: The State of Afib in America, and AFib in America: State Impact Reports
• Alliance for Aging Research — The Silver Book: Thrombosis
• Facing AFib — Includes a book, AFib and Stroke: The Heart Head Connection
• Team AFib — Access AFib InSight, webinars, and other resources

Blogs and Social Media

• Atrial Fibrillation Blog — For patient comments about living with afib
• Atrial Fibrillation Daily, Heart Daily, and Stroke Daily — Online newspapers based on StopAfib's Twitter Lists
• Atrial Fibrillation Event Calendar
• Dr. John M Blog — Electrophysiologist who blogs about afib and has had afib
• Kevin MD Blog — Physician who covers topics of interest to patients and physicians
• MyLifeLog — Patient and doctor tool for tracking afib medical history and experiences
• StopAfib.org on Facebook
• StopAfib.org on Twitter
• StopAfib.org Twitter Resources to Follow
• StopAfib.org YouTube Channel
• The Athlete's Heart Blog — Heart surgeon who is a triathlete

Discussion Forums

• A-fibcures — Discuss non-pharmaceutical afib cures
• Afib 5Box Forum — For 5-Box minimally invasive maze procedure alums
• AFIB Support Group — Atrial fibrillation support group
• Atrial Fibrillation Support Forum on Facebook
• Daily Strength Afib Support — Daily Strength afib forum and journals
• Lone Atrial Fibrillation — Lone atrial fibrillation, including treatment with diet and supplements
• MedHelp Forums: Heart Rhythm Community, Heart Rhythm Forum (Expert), and International Heart Rhythm Forum (Expert)
• P Atrial FibSupport — Support for all afib patients
• StopAfib.org Forums — For afib patients by afib patients
• UK Atrial Fibrillation Association Forum — UK Atrial Fibrillation Assn forum

Guidelines

• 2006 Guidelines for the Management of Patients with Atrial Fibrillation — ACC/AHA/ESC, Circulation, 2006;114:e257-e354
• Expert Consensus Statement on Catheter and Surgical Ablation of Atrial Fibrillation: Recommendations for Personnel, Policy, Procedures and Follow-Up — HRS/EHRA/ECAS, Heart Rhythm Society [Internet], Copyright, 2007
• Guidelines for the Management of Atrial Fibrillation 2010 — European Society of Cardiology (ESC)
• The Canadian Cardiovascular Society Atrial Fibrillation Guidelines 2010
• 2011 Focused Updates Incorporated Into the ACC/AHA/ESC 2006 Guidelines for the Management of Patients With Atrial Fibrillation — ACCF/AHA/HRS
• 2011 Focused Update on the Management of Patients With Atrial Fibrillation (Update on Dabigatran) — ACCF/AHA/HRS
• Simplified AHA Atrial Fibrillation Treatment Guidelines

Industry Atrial Fibrillation Patient Resources

• Biosense Webster My Fast Heartbeat Patient Info
• Medtronic Atrial Fibrillation Patient Info — Patient line: 1 (877) 526-7890
• Partnership for Prescription Assistance — Toll-free: 1 (888) 477-2669 — Referral to patient prescription assistance programs, sponsored by the pharmaceutical industry association

Medication Information & Interactions

• Drug Digest
• Drug Information Online
• Medline Plus Drug and Supplements
• PTINR.com — Resources for those on Coumadin® or warfarin
• WebMD Drugs & Interactions

Patient Sites

• A-fib.com — Steve Ryan
• AF-ideas.com — Dick Inglis
• AfibTreatment.com — Steve Ingram
• Into the Heart of the Alps for Atrial Fibrillation Awareness — Michele Straube
• Russ Ward
• Young Afibbers Blog — Jason Mattingly

Physician Resources

• American Association for Thoracic Surgery
• Annals of Thoracic Surgery
• Boston Atrial Fibrillation Symposium
• Circulation
• Circulation: Arrhythmia and Electrophysiology
• European Heart Rhythm Association
• Heart Rhythm Society
• The International Society for Minimally Invasive Cardiothoracic Surgery
• Journal of Cardiovascular Electrophysiology
• Journal of Interventional Cardiac Electrophysiology
• Journal of Thoracic and Cardiovascular Surgery
• Sanofi Aventis' Agora Programme — Dronedarone clinical trials
• Society of Thoracic Surgeons
• Western Atrial Fibrillation Symposium

Related Condition — Diabetes

• American Diabetes Association
• International Diabetes Federation — Features an extensive list of diabetes organizations around the globe
• National Diabetes Association

Related Condition — Heart Disease

• Hypertrophic Cardiomyopathy Association
• Mended Hearts
• WomenHeart
• World Heart Federation — Features an extensive list of heart disease organizations around the globe

Related Condition — Sleep Apnea

• American Sleep Apnea Association
• Apnea Support Forum
• Awake In America
• CPAPTalk.com Forum
• SleepGuide Forum
• Wake Up to Sleep — ResMed's Sleep Apnea Support Community

StopAfib.org Relationships Not Listed Elsewhere

• Health Power for Minorities
• The International Alliance of Patients' Organizations
• The Louise Batz Patient Safety Foundation
• National Forum for Heart Disease and Stroke Prevention
• Nurse Practitioner Healthcare Foundation
• Preventive Cardiovascular Nurses Association
• Spirit of Women Hospital Network
• World Heart Foundation